top of page


Business Case For Research Participant Compensation: From Cost to Asset
Discover how organizations are transforming the participant payment process to gain a strategic edge in research.
Â


Clinicians Win: How Patients and Researchers Left Behind in Learning Health Systems.
Discover why Learning Health System features mainly benefit clinicians, as opposed to patients and researchers.
Â


Having Your Learning Health System and Eating It Too!
Learn about the key ingredients to a Learning Health System and insights into how best to consume.
Â


The Great Disease: A Patient Registry Bus Ride Out of Hades
Learn about setup tips and tricks to overcome some of the unique challenges of multi-specialty patient registries.
Â


Data Deja Vu: Haven't I entered this before?
Learn about solving data entry requirements and functionality for accurate capture of repeating clinical events.
Â


Healthcare Research: When To Shout The Emperor Has No Clothes
Learn about inherent limitations to Plan-Do-Study-Act (PDSA) methods and how to avoid them in your quality improvement design.
Â


Mapping Clinical Data To Well-Being Domains: Epilepsy Wellness Wheel
Learn about mapping clinical data to Health and Well-being domains, and building reports that are quickly and accurately understood.
Â


Medication Adherence: Toppling Barriers With A Learning Health System
Learn about improving medication adherence using a Learning Health System. Case examples in an epilepsy population.
Â


Learning Health Systems: Removing the Tinted Glasses
Learn about opening up health model components to better guide and evaluate the work of Learning Health Systems.
Â


Tremor Registry: Shaking Up The Data Work Camp
Steps taken to transform a publication only patient registry into a useful clinical tool and engages patients in their care.
Â


Neuropsychology 2.0: Sailing the SHiP-NP To New Ports
Summary of new tools that improve scoring and test interpretation, and engage patients in a collaborative, interac
Â


Patient Disease Surveys: Turning Giants Into Windmills
Summary: Disease surveys in clinical settings have substantial benefits, but their use has been limited by a number of practical...
Â


Visualizing Disease States: A Tale of Two Raters
Part IV Summary: Multi-rater assessment is a common approach used to characterize disease states, particularly among populations at risk...
Â


Disease Information: Making It Relevant To Patients
Summary: There is a common look among newly diagnosed patients, the wide-eyed stare of information overload. Like deer in headlights, it...
Â


Melanoma Tumor Location: A Utility-Driven Approach to Common Data Elements
Summary: The National Institute of Health (NIH) Common Data Elements (CDEs) initiative has taken a largely theory-driven approach to...
Â
bottom of page