20+ Years of Experience
100's Of Academic, Private, NonProfit Registries
(some examples)
National Emergency
Airway Registry (NEAR)
Watch Video On Implementation
Epilepsy Case Example
Benefits
Done Hiding From
Transfer Your Registry For
Database Limitations?
/ Custom
Overcome Common Registry Limitations
Unusable Data
The data is unusable, incomplete, invalid, inaccessible, etc.
Can't Get Data
Extracting data is often technical, cumbersome, and limited to raw data.
No Patient Benefits
Only thing patients can do is fill out forms, often leading to dropouts.
High Dropout Rate
Patient's often don't complete data, loose interest, and/or dropout.
Delayed Changes
Changes are technically involved, delayed, and risk data loss.
Siloed Data
The data isn't accessible across studies requiring duplicate data entry
No Clinical Utility
Real-time clinic use impossible, and/or has no practical use.
No Research Features
Registry has no tools to manage other, connected research projects.
Nothing For Publishing
Little or no tools to facilitate the analysis and publication of results.