20+ Years of Experience
100's Of Academic, Private, NonProfit Registries
Example Videos On Implementation
National Emergency
Airway Registry (NEAR)
Epilepsy Case Example
Benefits
Change The Story
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1 Site
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Poor Data Quality
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Years Of Effort
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15 Sites
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Real-Time Clinical Utility
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First Publication
Studytrax Conversion
( 4 Months )
Frustrated With
/
Registry Limitations?
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Common Frustrations
Unusable Data
The data is unusable, incomplete, invalid, inaccessible, etc.
Delayed Changes
Changes are technically involved, delayed, and risk data loss.
Nothing For Publishing
Little or no tools to facilitate the analysis and publication of results.
High Dropout Rate
Patient's often don't complete data, loose interest, and/or dropout.
No Research Features
Registry has no tools to manage other, connected research projects.
Users Unhappy With It
There is a steep learning curve and the UI is difficult to navigate.
No Clinical Utility
Real-time clinic use impossible, and/or has no practical use.
No Patient Benefits
Only thing patients can do is fill out forms, often leading to dropouts.
Inflexible Features
Feature don't match workflow and have limited setup options.
Can't Get Data
Extracting data is often technical, cumbersome, and limited to raw data.
Siloed Data
The data isn't accessible across studies requiring duplicate data entry
Costly
Nearly everything about working with the registry involves significant cost.