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Business Case For Research Participant Compensation: From Cost to Asset
Discover how organizations are transforming the participant payment process to gain a strategic edge in research.
Clinicians Win: How Patients and Researchers Left Behind in Learning Health Systems.
Discover why Learning Health System features mainly benefit clinicians, as opposed to patients and researchers.
Having Your Learning Health System and Eating It Too!
Learn about the key ingredients to a Learning Health System and insights into how best to consume.
The Great Disease: A Patient Registry Bus Ride Out of Hades
Learn about setup tips and tricks to overcome some of the unique challenges of multi-specialty patient registries.
Data Deja Vu: Haven't I entered this before?
Learn about solving data entry requirements and functionality for accurate capture of repeating clinical events.
Mapping Clinical Data To Well-Being Domains: Epilepsy Wellness Wheel
Learn about mapping clinical data to Health and Well-being domains, and building reports that are quickly and accurately understood.
Tremor Registry: Shaking Up The Data Work Camp
Steps taken to transform a publication only patient registry into a useful clinical tool and engages patients in their care.
Neuropsychology 2.0: Sailing the SHiP-NP To New Ports
Summary of new tools that improve scoring and test interpretation, and engage patients in a collaborative, interac
Patient Disease Surveys: Turning Giants Into Windmills
Summary: Disease surveys in clinical settings have substantial benefits, but their use has been limited by a number of practical...
Visualizing Disease States: A Tale of Two Raters
Part IV Summary: Multi-rater assessment is a common approach used to characterize disease states, particularly among populations at risk...
COVID-19 Data Definition: Standards for Clinical Research
Summary: A massive research effort has been mobilized to address the COVID-19 pandemic. Timing is a critical to this investigative work...
Visualizing Disease States: A COVID-19 Experience
Part III Summary: The COVID-19 pandemic has mobilized all areas of research in an effort to minimize its affects. This article examines...
Visualizing Disease States: Slaying Heterogeneous Data
Part II Summary: This is the second in a series of articles examining nontraditional methods (i.e., excluding plots, charts, graphs) for...
Patient Registries: Clinical Report Design Techniques
Summary: The most successful outcomes-oriented patient registries incorporate direct utilization of the data within the day-to-day...
Is Clinical Research Relational?
Summary: What if the majority of new, trans-formative discoveries in clinical research have nothing to do with devices, pharmaceuticals...
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