Outcomes

The Great Disease: A Patient Registry Bus Ride Out of Hades

Learn about setup tips and tricks to overcome some of the unique challenges of multi-specialty patient registries.

Tumor / Repeating Clinical Event Research: Solving Data Entry

Learn about data entry requirements and functionality associated with capturing accurate, timely and complete tumor / clinical event data.

Mapping Clinical Data To Well-Being Domains: Epilepsy Wellness Wheel

Learn about mapping clinical data to Health and Well-being domains, and building reports that are quickly and accurately understood.

Tremor Registry: Shaking Up The Data Work Camp

Steps taken to transform a publication only patient registry into a useful clinical tool and engages patients in their care.

Neuropsychology 2.0: Sailing the SHiP-NP To New Ports

Summary of new tools that improve scoring and test interpretation, and engage patients in a collaborative, interac

Patient Disease Surveys: Turning Giants Into Windmills

Summary: Disease surveys in clinical settings have substantial benefits, but their use has been limited by a number of practical...

Visualizing Disease States: A Tale of Two Raters

Part IV Summary: Multi-rater assessment is a common approach used to characterize disease states, particularly among populations at risk...

COVID-19 Data Definition: Standards for Clinical Research

Summary: A massive research effort has been mobilized to address the COVID-19 pandemic. Timing is a critical to this investigative work...

Visualizing Disease States: A COVID-19 Experience

Part III Summary: The COVID-19 pandemic has mobilized all areas of research in an effort to minimize its affects. This article examines...

Visualizing Disease States: Slaying Heterogeneous Data

Part II Summary: This is the second in a series of articles examining nontraditional methods (i.e., excluding plots, charts, graphs) for...

Patient Registries: Clinical Report Design Techniques

Summary: The most successful outcomes-oriented patient registries incorporate direct utilization of the data within the day-to-day...

Is Clinical Research Relational?

Summary: What if the majority of new, trans-formative discoveries in clinical research have nothing to do with devices, pharmaceuticals...