Field Notes.
Notes from the work — registry and trial craft, conversations with the people running studies, and things worth writing down.
Starting a Registry: What’s a First Step Look Like?
The first step in starting a patient registry can take many forms, but involves planning around what you have, not what you're missing.
patient registry · getting started
Form Design: Setup Considerations for Repeating Row Tables
A planned form design shows four rows for findings, but eleven possible body systems. Three ways to build it electronically, each with varying strengths and weaknesses.
form design · data structure
Study Data Collection: Calendar Triggered Events
Sometimes data collection is based on calendar events (e.g., first week of month) rather than when participant events occur.
study design · data collection